The 20th of April is transplant day for sure...well at least unless I get sick in the meantime or something...Running a 99 to 100 temp, so gotta watch myself, stay hydrated and secluded for the most part.
They will nuke me with a chemo called Malphalan which I am calling weed killer since it sounds like something Ortho would sell (thanks for that Karen)...That stuff will kill off the bone marrow.
1 rest day after and on the 22nd they will reintroduce a portion of my stem cells. That is day 0, or as some call it their new birthday..Kills all my childhood and lifelong immunities as well.
Till then I am gaining strength gradually, and feeling a bit better each day.
Also, as with most people..I started to lose my hair. I now know what they mean when they say your hair hurts. After 34 years I had to shave my beard..Hurt to touch it..Man do I look funny..Rennie (my wife) just stares and shakes her head..We have been married 32 yrs..do the math.
Next will be the to cut my hair soon I think, when it starts falling out massively..Weird stuff for sure. Just glad I am a guy since it doesnt matter so much ...Worth it in the long run though.
Thats all for now. Next report around the 20th or so I suspect.
Subscribe to:
Post Comments (Atom)
Thanks for the update Daryl. I'll be counting down the days with you...
ReplyDeleteWe will be sending good energy your way, Daryl. Sounds like things are progressing as expected - and it won't be long until your bone marrow gets back to work. Watch out for chicken pox, though!
ReplyDeleteWell Daryl, don't expect any sympathy from me on the 'no hair' problem :)
ReplyDeleteBut keep us posted, we're all thinking about you.
Sending good thoughts your way.
ReplyDeleteDaryl,
ReplyDeleteGood luck to you.....I was where you are right now exactly five years ago with my Allo transplant and your last post brings back a shed load of memory's....sending you sunny "SYNCRO" thought waves fron the west coast...keep strong.
Richard.
Daryl,
ReplyDeleteI've been following your blog and I am in awe of your courage; looking mortality in the face and reporting back to us all so lucidly. There will be at least 6 Syncros adventuring together in the California Desert on the 20th. We will celebrate your new "birthday" on that day.
Long ago, I had a good friend at HP named Carson Kan. After some treatment, they sent him home with no hope of recovery. I was walking out of the building on my way to buy an apple for lunch one day and Carson was walking in. He said he just didn't have anything else to do but come back to work and friends. I walked him in to the freight elevator and then to his desk. The entire R&D lab turned silent as folks came by to welcome Carson. 15 years later he was doing fine. So will you and I would be honored to help walk you to work.
ReplyDeleteAl Knoll
prayers and thoughts are with you daryl
ReplyDelete